Resources
For more information on cavernous malformations, the following resources provide helpful insights, research updates, and support options:
Resources for Cavernous Malformations
A leading resource for people affected by cavernous malformations in the UK, offering support, information, and research news.
Alliance to Cure Cavernous Malformation
A nonprofit dedicated to funding research for cavernous malformations and improving patient outcomes through advocacy and awareness.
National Organization for Rare Disorders (NORD) - Cavernous Malformation
NORD provides detailed information on cavernous malformation, including symptoms, diagnosis, and treatment options, with a focus on rare diseases.
American Association of Neurological Surgeons (AANS) - Cavernous Malformations
A trusted source for patients to learn about cavernous malformations, including treatment options, surgical considerations, and expert opinions from neurosurgeons.